As a support group facilitator for dementia caregivers, I get asked a variety of questions. A popular question I get asked is, “How important is it to have a specific type of dementia diagnosis?” This can be a very personal decision and is a topic that should be discussed with the person living with dementia. It is, after all, they who live with the diagnosis and will undergo the testing. I have heard some families verbalize that they don’t want to add stress by putting them through the testing as it is a lengthy process. Some have verbalized that they would continue to love and support, so why put them through the process if nothing will change? Some families decide based on where in the stages of dementia their loved one is living: i.e., if they are moderate or late, testing doesn’t seem necessary.
I respect the personal decision-making process. However, I can provide some insight into considerations for making the decision. I can tell you that in the world of health care, early diagnosis is always better. There are more available treatment options, and it provides added time to prepare mentally, physically, financially, and emotionally. This is true for the person living with the diagnosis of dementia as well as their family and caregivers. Most importantly, early diagnosis allows for an opportunity to live their best life with dementia and a changing brain, especially if help is sought right away.
Additionally, if Lewy Body Dementia (LBD) is suspected, it can be very important to have a distinction between Alzheimer’s and LBD due to the increased risk of adverse medication effects. Many of the medications used to treat Alzheimer’s or Parkinson’s are problematic for persons with LBD, and these reactions can be sudden and severe.
It is also important to note that although there are many overlapping symptoms throughout the list of over 120 different types of dementia, some symptoms are more prevalent in certain types as well. Creating a list of the most notable symptoms first observed can help the doctor determine the type of dementia.
Enhancing the quality of life for your loved one living with dementia starts with education and awareness. At the Dementia Institute, we have various courses, consultations, and support groups to help you and your loved one understand the diagnosis and navigate the dementia journey. Visit the link below to view all of our offerings.
Lois Thomas, BSN, RN
Dementia Specialist